Marge Miles

Professor Emerita
Bereavement, Minority Health, Pediatric Nursing, Research

mmiles@email.unc.edu

263 Carolina Meadows Villa
Chapel Hill, NC 27517-8527

Please contact Dr. Miles by email about the use of her research tools.

Margaret Shandor Miles, BSN, PhD, FAAN, is a professor emerita of the School of Nursing at the University of North Carolina at Chapel Hill. She was one of the first pediatric clinical nurse specialists in the 1960s, helping to focus attention on the psychosocial needs of seriously ill children and their parents and grieving parents. Dr. Miles focused her research on the stress parents experience when their baby or child is hospitalized in an intensive care unit. The research instruments, particularly the Parental Stressor Scale: NICU, developed in those studies have been used by investigators worldwide. During her teaching career, Dr. Miles mentored numerous students and faculty as they started their research programs.  Dr. Miles was a pioneer and leader in pediatric nursing and helped to launch the Society of Pediatric Nurses, serving as the founding president. In 2013 Dr. Miles was honored as a Living Legend by the American Academy of Nursing.

 

More information is available at Dr. Miles’ UNC Web site.

2013 Living Legend in Nursing, American Academy of Nursing
2012 Leadership in Nursing Research Award, Southern Nursing Research Society
2008 Margaret Shandor Miles Maternal Child Poster Award for students, Southern Nursing Research Society
2006 Society of Pediatric Nurses, Distinguished Service Award, thereafter to be given as the Margaret Shandor Miles Distinguished Service Award
2003 Alumni of the Year Award, School of Nursing, University of Pittsburgh
2000 D. Jean Wood Award, Southern Nursing Research Society (with D. Holditch-Davis et al.)
1999 Certificate of Merit, Friends of National Institute of Nursing Research
1997 Society of Pediatric Nurses, Educator of the Year Award
1995 Kenan Competitive Leave, University of North Carolina at Chapel Hill
1994 Boston College, Alumni Award for Excellence in Education
1993 North Carolina Nurses Association, Nurse Researcher of the Year
1993 Mercy Hospital School of Nursing, Centennial Anniversary Alumni Award for Excellence in Education
1990 W N Reynolds Faculty Leave, University of North Carolina at Chapel Hill
1985 Compassionate Friends Appreciation Award
1983 Research Achievement Award, University of Kansas
1982 Fellow, American Academy of Nursing
1980 American Nurses Foundation Nursing ‘80 Scholar
1976 Boston College Bicentennial President Award, Alumni Department, awarded for work with dying children and bereaved parents
1975 Who’s Who among Students in American Universities & Colleges, University f Missouri-Kansas City
1973 Honor’s Day Award, University of Missouri-Kansas City
1972 Nurse Scientist Fellowship Award, Division of Nursing
1965 Cum Laude, University of Pittsburgh
1963 Cum Laude, Boston College
1962 Mater Spei Honor Society, Boston College

 

Books and Monographs

  • Miles, M.S. (1966).  Body integrity fears in a toddler.  Unpublished master’s thesis from the University of Pittsburgh, Pittsburgh, PA.
  • Miles, M.S. (1976).  The effects of a small group educational counseling experience on nurses attitudes toward death and toward dying parents.  Unpublished doctoral dissertation, University of Missouri, Kansas City and Dissertation Abstracts.
  • Miles, M.S. (1976).  Amy’s story:  A guide in preparing your child for cardiac catheterization.  Kansas City, KS: Section of Pediatric Cardiology, Department of Pediatrics, University of Kansas College of Health Sciences and Hospital.
  • Miles, M.S. (1978, 1980, 2012).  The grief of parents….When a child dies.  Oak Brook, IL: Compassionate Friends, Inc. This is the only publication that CF distributes nationwide to bereaved parents.
  • Miles, M.S. (1986).  Coping with grief…When a child dies of cot death.  Auckland, New Zealand: Cot Death Division, National Children’s Health Research Foundation.
  • Funk, S., Tornquist, E.M., Harrell, J., Miles, M.S. & Leeman, J. (Eds.) (2001). Key aspects of preventing and managing chronic illness.  New York: Springer.
  • Miles, M.S., Holditch-Davis, D., & Fitzpatrick, J. (Eds.) (2003).  Annual Review of Nursing Research.  NY: Springer.

Book Chapters

  • Gyulay, J. & Miles, M.R. (1975, 1978).  Family centered care for the terminally ill child.  In M.U. Barnard & D. Hymovich (Eds.), Family health care (pp. 241-261).  New York:  McGraw-Hill Book Company.
  • Miles, M.S. (1975).  Diane Rose:  Two and one half years old–lye ingestion–acute.  In. M. Duffey (Ed.).  Case studies of nursing intervention (pp. 15-29).  New York:  McGraw-Hill Book Company.
  • Miles, M.S. & Olson, J. (1975, 1978).  Effects of illness on the toddler.  In G.M. Scipien, et al. (Eds.),  Comprehensive pediatric nursing (pp. 423-434).  New York:  McGraw-Hill Book Company.
  • Miles, M.S. (1979, 1986).  Counseling strategies with high risk families.  In S.H. Johnson (Ed.),  High risk parenting (pp. 343-360).  New York:  Lippincott.
  • Miles, M.S. (1984).  Helping adults mourn the death of a child.  In H. Wass & C. Corr. (Eds.), Children and death (pp. 219-241).  Washington, DC:  Hemisphere Publishing Co. (Also reprinted in Issues in Comprehensive Pediatric Nursing).
  • Miles, M.S., Carter, M.C., Hennessey, J., Riddle, I., and Eberly, T.W. (1986).  Effects of the intensive care unit environment on parents of cardiac children.  In:  Doyle, E.F., Engle, M.A., Gersony, W., Rashkind, W., & Talner, N.S. (Eds.)  Pediatric cardiology (pp. 764-766). New York:  Springer Verlag.  Reprinted in Maternal Child Nursing Journal, 18(3), 235-239.
  • Miles, M.S. & Demi, A. (1986).  Guilt in bereaved parents.  In T. Rando (Ed.), Parental loss of a child:  Clinical and research considerations (pp. 97-118).  Champaign, IL:  Research Press.
  • Fetsch, S.H. & Miles, M.S. (1986).  Children and death.  In M. Amenta & N.L. Bohnet (Eds.), Palliative care nursing (pp.199-206).  New York:  Little, Brown and Company.
  • Riddle, I.I., Hennessey, J., Eberly, T.W., Carter, M.C. & Miles, M.S. (1987).  Stresses in the pediatric intensive care unit as perceived by mothers and fathers.  In C. Barnes (Ed.), Recent advances in nursing series:  Caring for sick children (pp. 149-162).  London:  Churchill-Livingston.  Reprinted in Maternal Child Nursing Journal, 18(3), 221-234.
  • Miles, M.S. & Neelon, V. (1989).  Pain in children.  In S. Funk, E. M. Tornquist., M.T. Champagne, L.A. Copp, & R.A. Wiese (Eds), Key aspects of comfort:  Pain, fatigue, and nausea (pp. 105-110).  New York:  Springer. (AJN Book of the Year Award).
  • Miles, M.S. & Burman, S. (1990).  Nursing care of the dying child.  In S.R. Mott, S.R. James, & A.M. Sperhac (Eds.),  Nursing care of children and families (pp. 731-758).  New York:  J.B. Lippincott.  (AJN Book of the Year Award).
  • Miles, M.S. & Warner, J. (1991).  The dying child in the critical care unit.  In M.F. Hazinski (Ed.), Nursing care of the critically ill child (pp. 101-115).  St. Louis, MO:  C.V. Mosby, Co.
  • Miles, M.S., D’Auria, J., Hart, E.M., Sedlack, D.A., & Watral, M.A. (1993).  Parental role alterations experienced by mothers of children with a life-threatening chronic illness. In S. Funk, E.M. Tornquist, M.T. Champagne, & R.A. Wiese (Eds.), Key aspects of chronic illness care:  Home and hospital (pp. 281-289).  New York: Springer.
  • Miles, M.S. & Frauman, A. (1993).  Barriers and bridges: Nurses’ and parents’ negotiation of caregiving roles with medically fragile infants.  In S. Funk, E.M. Tornquist, M.T. Champagne, & R.A. Wiese (Eds.), Key aspects of chronic illness care:  Home and hospital (pp. 239-250).  New York: Springer.
  • Miles, M.S. & Demi, A.S. (1993).  Historical and contemporary theories of grief.  In I. Corless, B. Germino, & M. Pittman-Lindeman (Eds.), Dying, death and bereavement (pp. 83-106).  Boston, MA:  Jones and Bartlett Publishers, Inc.
  • Demi, A.S. & Miles, M.S. (1993).  Bereavement guilt.  In I. Corless, B. Germino, & M. Pittman-Lindeman (Eds.), Dying, death and bereavement (pp. 171-188).  Boston, MA:  Jones and Bartlett Publishers, Inc.
  • Holditch-Davis, D., Miles, M. S. (1998). Parenting research in nursing. In Fitzpatrick, J. J. (Ed.), Encyclopedia of nursing research (pp. 416-418). New York: Springer. Also published in Fitzpatrick, J.J., & Montgomery, K.S. (Eds.) (1999). Maternal child health nursing research digest (pp. 104-106). New York: Springer. Revised 2003.
  • Miles, M. S. (1998). Parental response to the neonatal intensive care unit. In Fitzpatrick, J. (Ed.), Encyclopedia of nursing research (pp. 414-416). New York: Springer. Also published in Fitzpatrick, J.J., & Montgomery, K.S. (Eds.) (1999). Maternal child health nursing research digest (pp. 68-70). New York: Springer.
  • Miles, M.S. (1999). Parental response to birth of a high risk infant. In Fitzpatrick, J. (Ed.), Encyclopedia of nursing research. New York: Springer. Also published in Fitzpatrick, J.J., & Montgomery, K.S. (Eds.). Maternal child health nursing research digest. New York: Springer.
  • Miles, M.S. (1999). Introduction to section for special groups:  Adolescent pregnancy, pain in children, child lead exposure, and immigrant women. In Fitzpatrick, J.J., & Montgomery, K.S. (Eds.). Maternal child health nursing research digest (pp. 145-147). New York: Springer.
  • Miles, M.S.  (1999). Grief.  In C. Lindemann, & M. McAthie (Eds.), Fundamentals of contemporary nursing (pp. 1018-1032).  Philadelphia, PA: W.B. Saunders Co.
  • Miles, M.S., Andreas, L., & Black, B.  (1999). Care of the dying. In C. Lindemann & M. McAthie (Ed.), Fundamentals of contemporary nursing (pp. 1033-1090).  Philadelphia, PA: W.B. Saunders Co.
  • Miles, M.S., & Megerman, E. (2000).  Perinatal loss.  In Lowdermilk, D. et al. Maternity and women’s health nursing (7th ed) (pp. 1134-1154).  St. Louis, MO: Mosby.
  • Miles, M.S., Holditch-Davis, D., & Black, B. (2001).  HIV-self care management intervention with African American mothers.  In S. Funk, E.M. Tornquist, J. Harrell, M. Miles, & J. Leeman (Eds.), Key aspects of preventing and managing chronic illness (pp. 275-288).  New York: Springer.
  • Miles, M.S., & Pelosi, K. (2003).  Perinatal loss. In D. Lowdermilk, & S. Perry,  Maternity and women’s health nursing (8th ed) (pp. ).  St. Louis, MO: Mosby.
  • Holditch-Davis, D., & Miles, M.S. (2005). Parenting research in nursing. In J.J. Fitzpatrick & M. Wallace (Eds.), Encyclopedia of Nursing Research (2nd Ed.). New York: Springer.
  • Miles, M. S. (2005). Parental response to the neonatal intensive care unit. In Fitzpatrick, J., & Wallace, M. (Ed.), Encyclopedia of nursing research (2nd ed.). New York, NY: Springer.
  • Miles, M.S. (2007). Grieving and the loss of a newborn. In D.L. Lowdermilk & S.E. Perry (Eds), Maternity & women’s health care (pp. 1090-1114).  St. Louis: Mosby.
  • Campbell, L., & Miles, M.S. (2008). Implementing parenting programs for custodial grandparents. In B. Hayslip & P. Kaminski (Eds.).  Parenting the custodial grandchild (pp. 115-128).  NY: Springer
  • Miles, M.S. (2012). Perinatal loss and parental grief. In D.L. Lowdermilk & S.E. Perry (Eds), Maternity & women’s health care  St. Louis: Mosby.
  • Holditch-Davis, D., & Miles, M.S. (2012). Parenting research in nursing. In J.J. Fitzpatrick & M. Wallace (Eds.), Encyclopedia of Nursing Research (2nd Ed.). New York: Springer.
  • Miles, M.S., Thoyre, S., Beeber, L., Engelke, S., Weaver, M.A., & Holditch-Davis, D. (2011). Process evaluation of a nursing support intervention with rural African American mothers with preterm infants. In A. Lemelle, W. Reed, & S. Taylor, Handbook of African American health: Social and behavioral interventions. New York, NY: Springer Science+Business Media, LLC.
  • Holditch-Davis, D., & Miles, M.S. (2014).  Perinatal experiences associated with pregnancy complications and the birth of a high-risk infant. In The Oxford Handbook of Psychology, oxfordhb-9780199778072-e-012
  • Miles, M.S. (in press). Conceptual approaches to understanding parental grief after the death of a child. In B.P. Black, P. Wright., & R. Limbo, Perinatal and Pediatric Bereavement.  New York, NY: Springer.

research Articles

  • Miles, M.S. (1980).  The effects of a course on death and grief on nurses’ attitudes toward dying patients and death.  Death Education, 4, 245-260.
  • Miles, M.S. & Carter, M.C. (1982).  Sources of parental environmental stress:  Pediatric intensive care units.  Journal for Care of Children’s Health, 11, 65-69.
  • Banion, C., Miles, M.S., & Carter, M.C. (1983).  Problems of mothers in management of children with diabetes.  Diabetes Care, 6, 548-551.
  • Miles, M.S. & Crandall, E.K. (1983).  The search for meaning and its implication for growth in bereaved parents.  Health Values:  Achieving High Level Wellness, 7, 19-23.
  • Miles, M.S. & Demi, A. (1983-84).  Toward the development of a theory of bereavement guilt.  Omega: Journal of Death and Dying, 14, 299-314.
  • Miles, M.S. & Carter, M.C. (1983).  Assessing parental stress in intensive care units.  Journal of Maternal Child Nursing, 8, 354-360.
  • Miles, M.S. & Demi, A.C. (1984).  Rescue workers’ reactions following the Hyatt Disaster.  Death Education, 8, 315-331.
  • Miles, M.S. & Perry, K. (1985).  Parental response to the sudden accidental death of a child.  Critical Care Quarterly, 8, 73-84.
  • Miles, M.S. & Carter, M.C. (1985).  Parental coping strategies during a child’s admission to an intensive care unit.  Child Health Care, 14, 14-21.
  • Miles, M.S., Carter, M.C., Spicher, C., & Hassanein, R.  (1985).  Maternal and paternal reactions when a child is admitted to a pediatric ICU.  Issues in Comprehensive Pediatric Nursing, 7, 333-342.
  • Miles, M.S. (1985).  Emotional symptoms and physical health in bereaved parents.  Nursing Research, 34, 76-81.
  • Carter, M.C., Miles, M.S., Buford, T., & Hassanein, R. (1985).  Parental environmental stress in pediatric intensive care units.  Dimensions in Critical Care Nursing, 4, 180-188.
  • Eberly, T.W., Miles, M.S., Carter, M.C., Hennessey, J., & Riddle, I. (1985).  Parental stress following the unexpected admission of a child to the intensive care unit.  Critical Care Quarterly, 8, 57-65.
  • Demi, A.S. & Miles, M.S. (1986).  Bereavement research.  In Werley, H. & Fitzpatrick, H. (Eds.)  Annual Review of Nursing Research, 4, 105-123.
  • Demi, A.S. & Miles, M.S. (1987).  Parameters of normal grief.  Death Studies, 11, 397-412.
  • Frauman, A.C. & Miles, M.S. (1987).  Parental willingness to donate the organs of a child.  American Nephrology Nurses’ Association Journal, 14, 401-404.
  • Hamner, S.B. & Miles, M.S. (1988).  Coping strategies in children with cancer undergoing bone marrow aspirations.  Journal of Pediatric Oncology Nursing, 5, 11-15.
  • Demi, A.S. & Miles, M.S. (1988).  Suicide bereaved parents:  Emotional distress and physical health problems.  Death Studies, 12, 297-307.
  • Miles, M.S. & Frauman, A.C. (1988).  Public attitudes toward organ donation.  Dialysis and Transplantation, 17, 74-76.
  • Miles, M.S. (1989).  Parents of critically ill premature infants:  Sources of stress.  Critical Care Nursing Quarterly, 12, 69-74.
  • Carter, M. & Miles, M.S. (1989).  The Parental Stressor Scale:  Pediatric Intensive Care Unit.  Maternal Child Nursing Journal, 18, 187-198.
  • Miles, M.S., Carter, M.C., Riddle, I., Hennessey, J., & Eberly, T.W. (1989).  The pediatric intensive care unit environment as a source of stress for parents.  Maternal Child Nursing Journal, 18, 199-206.
  • Miles, M.S., Carter, M.C., Hennessey, J., Eberly, T.W., & Riddle, I. (1989).  Testing of a theoretical model:  sources of stress for parents in the pediatric intensive care unit.  Maternal Child Nursing Journal, 18, 207-219.
  • Miles, M.S. (1989).  Epilogue:  The challenge of enhancing the parental role when a child is critically ill.  Maternal Child Nursing Journal, 18, 241-243.
  • Miles, M.S., Carter, M.C., Eberly, T.W., Hennessey, J., & Riddle, I.I. (1989)  Toward an understanding of parent stress in the pediatric intensive care unit:  Overview of a program of research.  Maternal Child Nursing Journal 18, 181-185.
  • Miles, M.S., Funk, S.G., & Kasper, M.A. (1991).  The neonatal intensive care unit environment:  Sources of stress for parents.  AACN Clinical Issues in Critical Care Nursing, 2, 346-354.
  • Miles, M.S. & Mathes, M. (1991).  Preparation of parents for the intensive care unit experience:  What are we missing?  Children’s Health Care, 20, 132-137.
  • Miles, M.S. & Demi, A.S. (1992).  An examination of guilt in parents of children who died of suicide, accident, or chronic disease.  Omega:  Journal of Death and Dying, 24, 203-215.
  • Miles, M.S., Funk, S. & Kasper, M.A. (1992)  The stress response of mothers and fathers of preterm infants.  Research in Nursing and Health, 15, 261-269.
  • Miles, M.S., Funk, S., Carlson, J. (1993)  The Parental Stressor Scale:  Neonatal Intensive Care Unit.  Nursing Research, 42, 148-152.
  • Miles, M.S. & Frauman, A. (1993).  Barriers and bridges: Nurses’ and parents’ negotiation of caregiving roles with medically fragile infants.  In S. Funk, E.M. Tornquist, M.T. Champagne, & R.A. Wiese (Eds.), Key aspects of chronic illness care:  Home and hospital (pp. 239-250).  New York: Springe
  • Catlett, A., Miles, M.S., & Holditch-Davis, D. (1994).  Maternal perception of illness severity in premature infants.  Neonatal Networks, 13, 45-49.
  • Fleischman, A.R. et al. (Miles, M.S.). (1994).  Caring for seriously ill children, Pediatrics, 94, 433-439.
  • Nelson, A., Miles, M.S., Reed, S.B., Poprawa, C., & Cooper, H. (1994). Depressive symptomatology in parents of children with life-threatening oncologic and hematology disorders.  Journal of Psychosocial Oncology, 12, 61-75.
  • Miles, M.S., & D’Auria, J. (1994).  Parenting the medically fragile infant.  Capsules & Comments in Pediatric Nursing, 1, 2-6.
  • Miles, M.S. & Holditch-Davis, D.  (1995). Compensatory parenting:  How mothers describe parenting their 3-year-old prematurely born children.  Journal of Pediatric Nursing, 10, 243-253.
  • Cobb, B.K., Cairns, R.B., Miles, M.S., & Cairns, B.D.  (1995). A longitudinal study of the role of sociodemographic factors and childhood aggression on adolescent injury and “close calls,” Journal of Adolescent Health, 17, 381-388.
  • Miles, M.S., Carlson, J., & Funk, S.  (1996). Sources of support reported by mothers and fathers of infants hospitalized in an NICU, Neonatal Networks, 15 1-8.
  • Brunssen, S., Miles & Miles, M.S. (1996). Sources of environmental stress experienced by mothers of hospitalized medically fragile infants.  Neonatal Networks, 15, 88-89 (Abstract)
  • Miles, M.S., D. Burchinal, P., Holditch-Davis, Wasilewski, Y., & Christian, B.  (1996). Personal, family, and health-related correlates of depressive symptoms in mothers with HIV.  Journal of Family Psychology, 11, 23-34
  • Wereszczak, J., Miles, M.S., & Holditch-Davis, D. (1997). Maternal recall of the neonatal intensive care unit.  Neonatal Networks, 16(4), 33-40.
  • Holditch-Davis, D., & Miles, M.S. (1997).  Parenting the prematurely born child.  In J. J. Fitzpatrick & J. Norbeck (Eds.), Annual Review of Nursing Research (Vol. 15, pp. 3-34).  New York: Springer Publishing Co.
  • Miles, M.S., & Holditch-Davis, D. (1997).  Parenting the prematurely-born child: Pathways of influence.  Seminars in Perinatology, 213, 254-266.
  • Nelson, A.E., Miles, M.S., & Belyea, M. (1997).  Coping and support effects on mothers’ stress responses to their child’s hematopoietic stem cell transplantation. Journal of Pediatric Oncology Nursing, 14, 1-12.
  • Miles, M.S., Holditch-Davis, D., & Shepherd, H.  (1998). Concerns of mothers in parenting three-year-old prematurely born children. Journal of Maternal Child Nursing, 23, 2, 70-75.
  • Miles, M.S., Brunssen, S., & Carlson, J. (1999). The Nurse-Parent Support Tool.  Journal of Pediatric Nursing, 14, 1, 44-50.
  • Holditch-Davis, D., Tesh, E. M., Burchinal, M., & Miles, M. S.  (1999). Early interactions between mothers and their medically fragile infants. Applied Developmental Science, 3, 3, 155-167.
  • Miles, M.S., Holditch-Davis, D., Burchinal, P., & Nelson, D. (1999).  Distress and growth outcomes in mothers of medically fragile infants.  Nursing Research, 48, 3, 129-140.
  • Clark, S., & Miles, M.S. (1999). Conflicting responses: The experiences of fathers of infants diagnosed with severe congenital heart disease. Journal of the Society of Pediatric Nurses, 4, 1, 714.
  • Miles, M.S., Wilson, S., & Docherty, S. (1999). African American mothers’ response to hospitalization of a seriously ill infant.  Neonatal Networks, 18, 17-25.
  • Hale, A. K., Holditch-Davis, D., D’Auria, J., &. Miles, M. S. (1999). Assessment of emotional involvement of HIV-positive mothers and their infants. Journal of Pediatric Health Care, 13(3), 230-236.
  • Holditch-Davis, D., Miles, M.S., & Belyea, M. (2000). Feeding and non-feeding interactions of mothers and prematures. Western Journal of Nursing Research, 22(3), 320-334.
  • Holditch-Davis, D., & Miles, M.S. (2000). Mothers’ stories about their experiences in the neonatal intensive care unit. Neonatal Networks, 19, 13-21.
  • Holditch-Davis, D., Tesh, E. M., Goldman, B. D., Miles, M. S., & D’Auria, J. (2000). Use of the HOME Inventory with medically fragile infants. Children’s Health Care, 29 (4), 257-277.
  • Rew, L., Koniak-Griffin, D., Lewis, M.A., Miles, M.S., & Sullivan, A.L. (2000).  Secondary data analysis:  New perspective for adolescent research.  Nursing Outlook, 48, 223-229.
  • Beeber, L., & Miles, M.S. (2001).  Turning danger into opportunity: Teaching psychiatric nursing in the aftermath of a disaster.  Issues in Mental Health Nursing, 22, 533-548.
  • Holditch-Davis, Miles, M.S., Burchinal, M., O’Donnell, K., McKinney R., & Linn, W. (2001). Parental caregiving and developmental outcomes in infants of mothers with HIV.  Nursing Research, 50, 5-14.
  • Kisida, N., Holditch-Davis, D, Miles, M. S., & Carlson, J. (2001). Unsafe caregiving practices experienced by 3-year-old children born prematurely. Pediatric Nursing,  27, 13-24.
  • Miles, M.S., Gillsepie, J., & Holditch-Davis, D. (2001).  Mental and physical health in HIV + African American women.  Journal of Nurses in AIDS Care, 12, 42-50.
  • Wilson, S., & Miles, M.S. (2001). Expressions of spirituality by African American mothers with seriously ill infants.  Journal of the Society of Pediatric Nurses, 6, 116-122.
  • Holditch-Davis, D., Docherty, S.L., Miles, M.S., Burchinal, P., & Goldman, B.  (2001) Developmental outcomes of infants with bronchopulmonary dysplasia:  Comparison with other medically fragile infants.  Research in Nursing and Health, 24, 181-193.
  • Docherty, S., Miles, M.S., & Holditch-Davis, D. (2002) Perception of illness severity and worry about infant health in mothers of hospitalized medically fragile infants. Advances in Neonatal Care, 2, 84-92.
  • Holditch-Davis, D., Bartlett, T.R., Blickman, A.L., & Miles, M.S. (2003).  Post-traumatic stress symptoms in mothers of premature infants. Journal of Obstetric, Gynecologic, and Neonatal Nursing, 32, 161-171.
  • Gilmer, M.J., Harrell, J.S., Miles, M.S., & Hepworth, J.T. (2003).  Youth characteristics and contextual variables influencing physical activity in young adolescents of parents with premature coronary heart disease. Journal of Pediatric Nursing, 18, 159-168..
  • Miles, M.S. (2003).  Parenting the chronically ill child: Programs of research in nursing.  Annual Review of Nursing Research, 21, 247-277.
  • Miles, M.S., & Brunssen, S. (2003).  Parental Stressor Scale: Infant Hospitalization. Advances in Neonatal Nursing, 3,189-196.
  • Mew, A.M., Holditch-Davis, D., Belyea, M., Miles, M.S., & Fishel, A. (2003). Correlates of depressive symptoms in mothers of preterm infants.  Neonatal Networks, 22, 51-60.
  • Holditch-Davis, D., Cox, M.F., Miles, M.S., & Belyea, M. (2003).  Mother-infant interactions of medically fragile infants and non-chronically ill premature infants.  Research in Nursing and Health, 26, 300-311.
  • Miles, M.S., Holditch-Davis, D., Eron, J., Black, B.P., Pedersen, C., & Harris, D. (2003). An HIV self-care symptom management intervention for African American mothers.  Nursing Research, 52, 350-360.
  • Symons, F.J., Sperry, L., Holditch-Davis, D. & Miles, M. (2003).  Early stereotyped and self-injurious behavior in young children born at-risk and medically fragile:  A preliminary analysis. Developmental Medicine & Child Neurology, 45, 844-846.
  • Rhee, H., Miles, M.S., Halpern, C.T., & Holditch-Davis, D. (2005). Prevalence of recurrent physical symptoms in US Adolescents. Pediatric Nursing, 31, 314-319, 350.
  • Rhee, H., Holditch-Davis, D., & Miles, M. S. (2005).  Patterns of physical symptoms and associations with psychosocial factors in adolescents. Psychosomatic Medicine, 67, 1006-1012.
  • Miles, M.S., Holditch-Davis, D., Thoyre, S., & Beeber, L. (2005). Rural African American Mothers parenting prematurely-born infants: An ecological systems perspective.  Newborn and Infant Nursing Reviews, 5, 142-148.
  • Lee, T., Miles, M.S., & Holditch-Davis, D. (2006). Fathers’ support to mothers of medically fragile infants.  JOGNN, 35, 46-55.
  • D’Auria, J.P., Christian, B.J., & Miles, M.S. (2006). Being there for my baby: Early responses of HIV-infected mothers to the birth of an HIV-exposed infant.  Journal of Pediatric Health Care. 20(1), 11-18.
  • Enriquez, M., Witt, J., Miles, M.S., Gore, P., & Lackey, N.(2006). A pilot self-care group intervention for low-income women living with HIV in the Midwestern U.S.  Journal of Health Disparities Research and practice, 1, 1-18.
  • Miles, M.S., Holditch-Davis, D., Pedersen, C., Eron, J., & Schwartz, T. (2007). Emotional distress in African American women with HIV.  Journal of Community and Preventive Psychiatry, 33(1-2), 35-50 and HIV: Issues with mental health and illness (ed: M.B. Blank & M.M. Eisenberg). Haworth Press, Inc. (pp. 35-50).
  • Polzer, R., & Miles, M.S. (2007). Spirituality in African Americans with Diabetes: Self-Management Through a Relationship with God. Qualitative Health Research., 17(2), 176-188.
  • Miles, M.S., Holditch-Davis, D., Schwartz, T. A., & Sher, S. (2007). Depressive symptoms in mothers of prematurely-born-children. Journal of Developmental and Behavioral Pediatrics,28 (1), 36-44
  • Lee. T., Holditch-Davis, D., & Miles, M.S. (2007).  The influence of paternal support and maternal and child characteristics on maternal parenting of medically fragile infants. Research in Nursing and Health, 30, 17-30.
  • Docherty, S., Miles, M.S., & Brandon, D. (2007). Searching for “The Dying Point”:Providers experiences with palliative care in the pediatric acute care environment.  Pediatric Nursing, 33, 335-341.
  • Docherty, S., Lowry, C., & Miles, M.S. (2007) Poverty as context for parenting experiences of low-income Lumbee Indian mothers with a medically fragile infant. Neonatal Networks, 26, 1-9.
  • Enriquiz, M., Farnan, R., Simpson, K., Grantello, S., & Miles, M.S.  (2007). Poverty, pregnancy, and HIV. The Journal for Nurse Practitioners, 3(10), 687-693.
  • Cho, J., Holditch-Davis, D., Miles, M.S., & Belyea, M. (2008).  Effects of maternal depressive symptoms and gender on interactions between mothers and their medically at-risk infants. Journal of Obstetric, Gynecologic and Neonatal Nursing, 37, 58-70.
  • Polzer, R. & Miles, M.S. (2008).  Spirituality: A cultural strength for African American mothers with HIV. Clinical Nursing Research, 17, 118-132
  • Black, B.P., Holditch-Davis, D., & Miles, M. (2009). Life Course Theory as a framework to examine becoming a mother of a medically fragile preterm infants.  Research in Nursing and Health, 32, 38-49.
  • Cho, J., Holditch-Davis, D., Miles, M.S., & Belyea, M. (2009). Effects of gender on the interactions between mothers and their medically at-risk infants. Journal of Infant and Reproductive Health, 27, 89-105..
  • Goeppinger, J., Miles, M.S., Weaver, W., Campbell, L., & Roland, E.J. (2009). Building nursing research capacity to address health disparities: Engaging minority baccalaureate and master’s students. Nursing Outlook, 57,.158-165.
  • Phetrasuwan, S., Miles, M.S., & Mesibov, G.G. (2009). Defining Autism Spectrum Disorders. Journal for Specialists in Pediatric Nursing, 14, 206-209.
  • Phetrasuwan, S., & Miles, M.S., (2009). Parenting stress in mothers of children with Autism Spectrum Disorder.  Journal for Specialists in Pediatric Nursing, 14, 157-165.
  • Holditch-Davis, D., Miles, M. S., Weaver, M. A., Black, B. P., Beeber, L. S., Thoyre, S., & Engelke, S. (2009). Patterns of distress in African-American mothers of preterm infants.  Journal of Behavioral and Developmental Pediatrics, 30(3), 193-205. NIHMSID: NIHMS126550.
  • Waldrup, J., & Miles, M. (2010). Sources of distress for southern African American mothers with HIV. The Source, 19(2), 12-15..
  • Sengupta, S., Strauss, R., Miles, M., Roman-Isler, M., Banks, B., Corbie-Smith, G. (2010). A conceptual model exploring the relationship between HIV stigma and implementing HIV clinical trials in rural communities. North Carolina Medical Journal, 71, 113-122.
  • Cho, J., Holditch-Davis, D., & Miles, M.S. (2010). Gender effects on the health and development of medically at-risk infants. Journal of Obstetric, Gynecologic, and Neonatal Nursing, 39, 536-519.
  • Sengupta, S., Banks, B., Jonas, D., Miles, M.S., & Corbie-Smith G. (2010). HIV interventions to reduce HIV/AIDS stigma: A systematic review. AIDS and Behavior,  doi: 10.1007/s10461-010-9847-0).
  • Miles, M.S., Isler, M.R., Banks, B. Sengupta, S., & Corbie-Smith, G. (2011). Silent endurance and profound loneliness: Socioemotional suffering in African Americans living with HIV in the rural South. Qualitative Health Research, 24(4), 489-501.
  • Miles, M.S., Holditch-Davis, D., Burchinal, M., & Brunssen, S.  (2011). Maternal role attainment with medically fragile infants: Part 1. The process over the first year of life.  Research in Nursing and Health , 34(1), 20-34.
  • Holditch-Davis, D., Miles, M.S., Burchinal, M., & Goldman, B. (2011). Maternal role attainment with medically fragile infants: Part 2. Relationship to the quality of parenting.  Research in Nursing and Health,34(1), 35-48..
  • Brooks, J. L., Holditch-Davis, D., Landerman, L. R., Miles, M. S., Engelke, S.  (2011). Exploring modifiable risk factors for wheezing in African American premature infants.  Journal of Obstetric, Gynecologic, and Neonatal Nursing.
  • Brooks, J.L., Holditch-Davis, D., Weaver, M.A., Miles, M.S., & Engelke, S.C. (2011) Effects of secondhand smoke exposure on the health and development of African American premature infants. International Journal of Family Medicine, 11,  doie:10.1155/2011/165687.
  • Campbell, L., Miles, M.S., Carthron, D., & LaShanda, P. (2012). Examining the effectiveness of a case management  program for custodial grandparent families. Nursing Research and Practice, 2012, Article ID 124230, doi:10.1155/2012/124230.
  • Song, M., Ward, S.E., Hanson, L.C., Lin, F., Hamilton, J.B., Hladik, G., Fine, J.P., Bridgman, J.C., Sun, S.K.,& Miles, M.S. (2012). Psychological symptoms and end-of-life decision making confidence in surrogate decision makers of dialysis patients. Journal of Nephrology Social Work, 36, 24-30.
  • Corbie-Smith, G., Isler, M. R., Miles, M.S. Banks, B. (2012). Community based HIV clinical trials: An integrated approach in underserved, rural, minority communities. Progress in Community Health Partnerships: Research, Education, and Action,6(2,121-129. doi: 10.1353/cpr.2012.0023.
  • Corbie-Smith,  G., Odeneye, E., Banks, B., Miles, M., & Roman-Isler,  M. (2012. Development of a multilevel intervention to increase HIV clinical trial participation among rural minorities. Health Education and Behavior, 18, [Epub ahead of print]
  • Roman-Isler, M., Miles, M., Banks, B., & Corbie-Smith, G. (2012). Acceptability of a mobile health unit for rural HIV clinical trial enrollment and participation, AIDS and Behavior, 16, 1895-1901.

            Clinical Articles

  • Miles, M.S. (1969).  Carl and Willy.  Nursing Forum, 8, 146-147.  Republished in Voices (2009).
  • Miles, M.S. (1969).  Body integrity fears in a toddler.  Nursing Clinics of North America, 4, 39-51.
  • Galiardi, D. & Miles, M.S. (1969).  Interactions of two mothers of children with incurable cancer.  Nursing Clinics of North America, 4, 89-100.
  • Lukens, J. & Miles, M.R. (1970).  Childhood leukemia:  Meeting the needs of the child and his family.  Missouri Medicine, 236-241.
  • Miles, M.R. (1970).  The clinical specialist in pediatric nursing.  Missouri Nurse, 39, 3-4.
  • Miles, M.S. (1977).  S.I.D.S.:  Parents are the patients.  Journal of Emergency Nursing, 3, 29-32.
  • Miles, M.S., Mattioli, L. & Diehl, A.M. (1977).  Parent counseling:  Psychological support of children with critical heart disease.  Journal of the Kansas Medical Society, 78, 134-136, 151.
  • Miles, M.S. (1979).  The impact of the intensive care unit on parents.  Issues in Comprehensive Pediatric Nursing, 3, 72-90.
  • Pardo, L, Miles, M.S., Taylor, M., & Mattioli, L. (1981).  Developmental and neurological evaluation in preschool children with critical congenital heart disease.  Journal of Kansas Medical Society, 82(3), 115-118, 136.
  • Miles, M.S. (1981).  Play therapy:  A review of theories and comparison of selected techniques.  Issues in Mental Health Nursing, 3, 63-75.
  • Demi, A. & Miles, M.S. (1982).  Understanding psychological consequences of disaster.  Journal of Emergency Nursing, 9, 11-16.
  • Suellentrop, A., Miles, M.S., & Carter, M.C. (1983).  Community health nurse follow-up of infants discharged from neonatal intensive care units.  Kansas Nurse, 58, 6-8.
  • Miles, M.S. (1983).  The importance of small grants in nursing research.  Kansas Nurse, 58,.
  • Demi, A. & Miles, M.C. (1984).  A critical examination of nursing leadership in disaster.  Topics in Clinical Nursing, 6, 63-78.
  • Hansen, S., Holaday, B. & Miles, M.S. (1990).  The role of pediatric nurses in a federal program for infants and young children with handicaps.  Journal of Pediatric Nursing, 5, 246-251.
  • Miles, M.S. (2000).  Commentary.  Evidence-Based Nursing, 3, 5.
  • Miles, M.S. (2001).  Foreward.  In M. A. Q. Curley & P.A. Moloney-Harmon (Ed.). Critical care nursing of infants and children (2nd ed.) (p. xiii). Philadelphia, PA: W.B. Saunders.
  • Miles, M.S. (2003).  Support for parents during a child’s hospitalization:  A nurse’s guide to helping parents cope.  American Journal of Nursing, 103 (2), 62-64.

Research Grants: Completed

  • Co-investigator. Guiding mothers to co-regulate feeding in very preterm infants, PI: Sue Thoyre, School of Nursing, The University of North Carolina at Chapel Hill,  R21 NR012507, 2012-2014.
  • Co-investigator.  Decision making for infants with complex life-threatening conditions, PIs: S. Docherty and D. Brandon, School of Nursing, Duke University, NINR, NIH, R01 NR010548, 9/30/08 to 7/31/2013, $1,,950,000.
  • Consultant and Advisory Board, NCCU Center for Translational Health Equality Research, PI: Kimbro, K.S. & Pointer, M., 1 P20 MD006885-01, 06/01/2012-5/31/15, $6,613,418
  • Advisory board and consultant, A randomized controlled trial of SPIRIT: A Representational Intervention to Promote Preparation for End-of-Life Decision Making (SPIRIT study), PI: Song, Mi Kyung, School of Nursing, The University of North Carolina at Chapel Hill, NIH, NINR 501NR011464, 2009-2014.
  • Co-Investigator.  Increasing enrollment of minorities in HIV clinical trials.  (G. Corbie-Smith, School of Medicine, Shep Center, PI), NINR, NIH, Grant NR010204-01A2, 9/1/06-8/31/11.
  • Co-Investigator.  Grief and loss in the wake of the HIV epidemic in Cameroon: Toward development of grief support interventions.  With Tih Pius Muffin, MPH, PhD, Director of Health Services and George Ngembe, Palliative Care Nurse, Banso Baptist Hospital, Cameroon Baptist Convention, Republic of Cameroon, Partially supported by the UNC Fogerty Grant with Ada Adimora, MD, 2007-2009.
  • Co-Investigator. Maternal Caregiving of Children Post Stem Cell Transplant. Sharron Docherty, PI, Duke University School of Nursing, NINR, NIH, Grant R15 NR009041, 8/04 to 9/07, $150,000.
  • Co-Principal Investigator. A Nursing Support Intervention for Mothers of Preterm Infants (D. Holditch-Davis, PI).  NINR, NIH, Grant R01 NR NR05263, 9/02 to 9/07, $2,063,048.
  • Co-Investigator.  Development of a self-care and parenting intervention for African American grandmothers rearing grandchildren (L. Campbell, PI), NIH Grant P20 NR8360, Center for Innovation in Health Disparity Research, (C. McQuiston, Director), 9/1/06-6/30/07, $10,000.
  • Co-Investigator.  Mental health care for African American adolescents. Lenora Campbell, PI, Winston Salem University School of Nursing, NINR, NIH P30 NR08369, 7/1/03 TO 7/1/04, $10,000.
  • Co-Investigator.  Assessment of Biological and Social Risk in Preterm Infants.  Dr. Diane Holditch-Davis, PI. NINR, NIH, Grant R01 NR01894, Shannon Award 9/96-9/97 $100,000; 6/1/98 to 5/31/02 $1,311,863.
  • Co-Investigator.  The Development of Repetitive and Self-Injurious Behaviors in Medically Fragile Infants. Frank Symons, Principal investigator and Diane Holditch-Davis, Co-Investigator. Pilot/feasibility study funded by NINR as part of research support center grant (P30 NR03962), 5/98-4/99, $7000.
  • Principal Investigator.  HIV Symptom Management with African American Mothers.  Dr. Diane Holditch-Davis, Dr. Joe Eron, Dr. Cort Pederson, and Dr. Peg Burchinal, co-investigators.  NINR, NIH, Grant  R01 NR04416.  September 30, 1996 to August 31, 1999, $1,001,272.
  • Principal Investigator.  Development of HIV Symptom Management Protocols for Mothers with HIV.  with Diane Holditch-Davis and Yvonne Wasilewski, co-investigators.  CRCI, Grant No.P30 03962, $9,000.
  • Co-Principal Investigator.  Nursing Support to Preterm Mothers.  Dr. Diane Holditch-Davis, PI.  Funded by the Center for Research on Chronic Illness, School of Nursing NINR, NIH, Grant No: P30 NR 039962, 1996-1997.
  • Principal Investigator, Parental Caregiving of Infants Sero-positive for HIV.  Dr. Diane Holditch-Davis, Co-PI, Dr. Peg Burchinal (FPG), Dr. Jospeh Telfair (SPH), Dr. Jennifer D’Auria, Co-Investigators, Subcontract Duke University:  C. Wilfert, MD, K. O’Donnell, PhD, Co-investigators, NIMH, NIH Grant No: RO1 MH51019, June 1, 1993-May 31, 1996, $1,163,426.
  • Principal Investigator, Parental Role Attainment with Medically Fragile Children.  Dr. Diane Holditch-Davis, Co-PI, Dr. Annette Frauman, Dr. Peg Burchinal, and Dr. Barbara Goldman, Co-Investigators.  NINR, NIH, Grant No: RO1 NR02868), March 1, 1992-February 28, 1997, $1,380,630.
  • Co-Investigator, A Longitudinal Study of Health Behaviors in Vulnerable Youth,  Dr. Robert Cairns, PI, Beverly Cairns & Brenda Cobb, Co-investigators, Exploratory Center Grant for the Study of Health Behaviors in Vulnerable Youth, NIMH, Grant No: P20 MH49878, March 1, 1992-February 28, 1995, $13,680.
  • Principal Investigator, Survey of Bereaved Families Who Agreed to Organ Donation, Dr. Michael Belyea and the National Kidney Foundation, Co-investigators, Association for Death Education and Counseling and the National Kidney Foundation, 1993-1994.
  • Principal Investigator, Parental Role Attainment with Parents of Preterm Infants,  National Association of the College of Obestetric and Gynecologic Nurses Award, 1990-1992, $3,000.
  • Principal Investigator, Stress, Emotional and Physical Health Outcomes in Parents of Children with Cancer, Co-investigators, Audrey Nelson, Coleen Poprawa, Herbert Cooper,  Cancer Education Program, National Cancer Institute, UNC School of Medicine, Summer Student Fellowship,  1988, 1989, 1990, 1991, 1992 and Sigma Theta Tau, Eta Chapter, 1988-1990.
  • Co-Investigator, Parenting the Prematurely Born Child,  Dr. D. Holditch-Davis, PI, University Research Council, 1989-1990, $1,000.
  • Principal Investigator, Parenting Medically Fragile Children, Dr. Annette Frauman, Co-investigator, Biological Sciences Research Grant NIH, 1988, $2,350;  Frank Porter Graham Innovative Research Award, 1988-1989, $5,000; School of Nursing Small Grants Program, 1988-1989, $5,000.
  • Principal Investigator, Parental Stressors in the Neonatal Intensive Care Unit, Co-investigators, Drs. Sandra Funk & Mary Ann Kasper,  Research Fund, College of Health Sciences, University of Kansas, 1981, $1,000; Division of Nursing, HRA, DHHS, Grant No: NU 02184, 1984-1986, $67,056.
  • Principal Investigator, Emotional Symptoms and Physical Health in Bereaved Parents.  American Nurses’ Foundation, Bristol-Myers Scholar, 1981, $1,923; Sigma Theta Tau, 1983, $2,725, Co-investigator, Dr. Alice Demi, Georgia State University.
  • Principal Investigator, Parental Stress in the Pediatric ICU, Co-investigator, Dr. Melba Carter. School of Nursing, University of Kansas, Research Committee, 1979-1980, $525;  American Nurses Foundation, 1980-1981, $1,750;  Division of Nursing, HRA, DHHS, Grant No: NU 00876, 1981-1983, $89,834, Association for Care of Children’s Health, 1982-1983, $800.