Kathleen Knafl, PhD, FAAN

Frances Hill Fox Distinguished Professor
Family, Qualitative & Mixed-Methods Research Methodology, Research

kknafl@email.unc.edu

919.843.3175

The University of North Carolina at Chapel Hill
School of Nursing
Carrington Hall, CB #7460
Chapel Hill, NC 27599-7460

Office: 408

Currently Accepting PhD Students

Kathleen (Kathy) Knafl is the Frances Hill Fox Distinguished Professor and Associate Dean for Research at the School of Nursing, University of North Carolina at Chapel Hill. A sociologist who has spent her entire academic career in nursing, Dr. Knafl’s research addresses family response childhood chronic conditions. With funding from three National Institutes of Health (NIH) grants, she led the development of the Family Management Style Framework, including development of a structured measure of family management (Family Management Measure – FaMM). Further information on the development, testing, and scoring of the FaMM can be found here.

Much of Dr. Knafl’s work has involved mixed-methods designs and entailed treating the family/dyad as the unit of analysis. Her current NIH grant is a mixed-methods synthesis of research on the intersection of family life and childhood chronic conditions. Drawing on data from over 1000 research reports, the study addresses the nature and efficacy of family-focused interventions and the will the relationships among parent, child, and family variables in the context of childhood chronic conditions. Dr. Knafl has served as a consultant on multiple NIH grants, most often providing guidance of data collection and analysis in family studies. She is on the editorial boards of the Journal of Family Nursing, Research in Nursing & Health, and Nursing Outlook. She is a founding member of the International Family Nursing Association.

2018, Alumni Achievement Award, Alumni Association University of Illinois at Chicago

2015, International Family Nursing Association Award for Excellence in Family Nursing

2009, Frances Hill Fox Distinguished Professor, University of North Carolina at Chapel Hill

2007, Distinguished Contributions to Family Nursing Research Award. Journal of Family Nursing

2005, Elizabeth N. Gray Distinguished Professor, Oregon Health & Sciences University

2001, Honorary Fellow American Academy of Nursing

1997, Citation for Outstanding Contributions to Nursing and Health Care, American Academy of Nursing

1997, Alumni Association University of Illinois at Chicago Flame Award for Teaching Excellence

1993, Honorary Membership, Society for Pediatric Nurses

1990, 2000, University of Illinois at Chicago College of Nursing Graduate Student Organization Award for Faculty Excellence

1989, Honorary Membership Sigma Theta Tau International

1978, 1980, American Journal of Nursing Book of the Year Award

 

Selected Refereed Publications from past 10 Years

Rogers, B., Jacelon, C., Knafl, K. (2018). Concept analysis and the advance of nursing knowledge: State of the Science. Journal of Nursing Scholarship, 50, 451-459.

Hill, C., Knafl, K., Santacroce, S. (2018). Family-centered care from the perspective of parents cared for in a pediatric intensive care unit: An integrative review. Journal of Pediatric Nursing, Epub ahead of print November 16, 2017.

Ulrich, C., Qiuping, Z., Ratcliff, S., Knafl, K., Wallen, G., Richmond, T., & Grady, C. (2018). Development and preliminary testing of the perceived benefit and burden scales for cancer clinical trial participation. Journal of Empirical Research on Human Ethics Research, Epub ahead of print April 9, 2018.

Crandell, J., Sandelowski, M., Leeman, J., Havill, N., & Knafl, K. (2017). Parenting behaviors and the wellbeing of children with a chronic physical condition. Families, Systems and Health, 36, 45-61.

Fleming, L., Knafl, K., & Van Riper, M. (2017). How the child’s gender matters for families having a child with congenital adrenal hyperplasia. Journal of Family Nursing, 23, 516-533.

Fleming, L., Knafl, K., Knafl, G., & Van Riper, M. (2017). Management of childhood congenital adrenal hyperplasia. Journal of Pediatric Health Care, 31, 560-577.

Knafl, K., Knafl, G., Roscigno, C., & Van Riper, M. (2017). Family management of childhood chronic conditions: Does it make a difference if the child has an intellectual disability? American Journal of Medical Genetics Part A, 176, 82-91.

Knafl, K., & Van Riper, M. (2017). Tips for developing a successful family research proposal. Journal of Family Nursing, 23, 450-460.

Estrem, H., Pados, B., Park, J., Knafl, K., Thoyre, S. (2017). Feeding problems in infancy and early childhood: Evolutionary concept analysis. Journal of Advanced Nursing, 3, 56-70.

Knafl, G., Barakat, L., Hanlon. A. Hardie, T., Knafl, K., Deatrick, J. (2017). Adaptive modeling: An approach to incorporating nonlinearity in regression analysis. Research in Nursing & Health, 40, 273-282.

Fleming, L., Knafl, K., & Van Riper, M. (2017). Management of childhood congenital adrenal hyperplasia – An integrative review. Journal of Pediatric Health Care, 31, 560-577.

Knafl, K., & Whittemore, R. (2017). Top 10 tips for undertaking synthesis research. Research in Nursing & Health, 40, 189-193.

Knafl, G., Knafl, K., Grey, M., Dixon, J., Deatrick, J., & Gallo, A. (2017). Incorporating nonlinearity into mediation analysis, BMC: Medical Research Methodology, 17, 45.

Knafl, K., Havill, N., Leeman, J., Fleming, L., Crandell, J., & Sandelowski, M. (2016). The Nature of family engagement in interventions for children with chronic conditions. Western Journal of Nursing Research, 39, 690-723.

Banta-Wright, S., Houck, G., Kodadek, S., Steiner, R., & Knafl, K. (2016). The work of managing phenylketonuria and breastfeeding. Annals of Nursing Research and Practice, 1, published online August 4, 2016. http://austinpublishinggroup.com/nursing-research-practice/online-first.php

Willis, D. Sullivan-Bolyai, S., Cohen, M., & Knafl, K. (2016). Distinguishing Features and Similarities between Descriptive Phenomenological and Qualitative Description Research. Western Journal of Nursing Research, 38, 1185-1204.

Leeman, J., Crandell, J., Lee, A., Bai, J., Sandelowski, M., & Knafl, K. (2016). Family functioning and the well-being of children with chronic conditions: A meta-analysis. Research in Nursing & Health, 39, 229-243.

Estrem, H., Pados, B., Thoyre, S., Knafl, K., McComish, C., & Park, J. (2016). Concept of pediatric feeding problems from the parents’ perspective. MCN in Advance.

Ulrich, C., Ratcliffe, S., Wallen, G., Zhou, Q., Knafl, K., & Grady, C. (2016). Cancer clinical trials participants’ assessment of risk and benefit. AJOB Empirical Bioethics,7, 8-16

Knafl, K., Leeman, J., Havill, N., Crandell, J., & Sandelowski, M. (2016). The contribution of family variables to the well-being of youth with arthritis. Journal of Family Nursing, 21, 579-616.

Leeman, J., Sandelowski, M., Havill, N., & Knafl, K. (2015). Parent-to-Child Transition in Managing Cystic Fibrosis: A Research Synthesis. Journal of Family Theory & Review,7, 167-183.

Knafl, K., Leeman, J., Havill, N., Crandell, J., & Sandelowski, M. (2015). Delimiting family in syntheses of research on childhood conditions and family life. Family Process, 54, 173-184.

Havill, N., Leeman, J., Shaw-Kokot, J., Knafl, K., Crandell, J., & Sandelowski, M. (2014). Managing large-volume literature searches in research synthesis studies. Nursing Outlook, 62, 112-118.

Knafl, K., Deatrick, J, Knafl, G., Gallo, A. Grey, M., Dixon, J. (2013). Patterns of family management of childhood chronic conditions and their relationship to child and family functioning. Journal of Pediatric Nursing, 28, 523-535.

Sandelowski, M., Leeman, J., Knafl, K., & Crandell, J. L. (2013). Text-in-Context: A method for extracting findings in mixed-methods mixed research synthesis studies. Journal of Advanced Nursing, 69, 1428-1437.

Swallow, V., Knafl, K., Santacroce, S., Hall, A., Smith T., Campbell, M. & Webb, N. (2012). The online parent information and support project, meeting parents’ information and support needs for home-based management of childhood chronic kidney disease: research protocol. Journal of Advanced Nursing, 68, 2095-2102.

Knafl, A., Deatrick, J., & Havill, N. (2012). Continued development of the Family Management Style Framework. Journal of Family Nursing, 18, 11-34.

Knafl, G., Dixon, O’Malley, J., Grey, M., Deatrick, J., Gallo, A., & Knafl, K. (2012).Scale development based on likelihood cross-validation. Statistical Methods for Medical Research, 21, 599-619.

Rearick, E., Sulllivan-Bolyai, S., Bova, C., & Knafl, K. (2011). Parents of children newly diagnosed with type 1 diabetes: Experiences with social support and family management. Diabetes Educator, 37, 508-18.

Knafl. K., Deatrick, J., Gallo, A., Dixon, J., Grey, M., Knafl. G., O’Malley, J. (2011). Assessment of the psychometric properties of the Family Management Measure. Journal of Pediatric Psychology, 36, 494-505.

Knafl, K., Darney, B., Gallo, A., Angst, D. (2010). Parental perceptions of the outcome and meaning of normalization. Research in Nursing & Health, 33,87-98.

Gallo, A., Knafl, K., & Angst, D. (2009). Information management in families with a child with a genetic condition. Journal of Pediatric Nursing, 24, 194-204.

Gallo, A., Angst, D., & Knafl, K. (2009). Disclosure of genetic information to family members. American Journal of Nursing, 109, 65-69.

Knafl, G., Dixon, J., O’Malley, J., Grey, M., Deatrick, J., Gallo, A., & Knafl, K. (2009). Analysis of cross-sectional univariate measurements for family dyads using linear mixed modeling. Journal of Family Nursing, 15, 130-151.

Co-investigator, “How Parent Constructs Affect Parent and Family Wellbeing after a Child’s Death” funded by the National Institute of Nursing Research, R091NR015831, 9/29/15–6/30/19.

Co-investigator, “Retention in Cancer Clinical Trials: Modeling Patient-Participants’ Risk-Benefit” (R01CA196131 awarded to C. Ulrich), Funded by the National Institute of Cancer 2014–2019.

Principal Investigator, “Mixed-Methods Synthesis of Research on Childhood Chronic Conditions and Family” (R01NR01445), Funded by the National Institute for Nursing Research, 2011–2016, $1,347,026.

Co-investigator, “Measuring Self-Management of Type 1 Diabetes in Youth” (R01NR08579 awarded to L. Schilling), Funded by the National Center for Nursing Research, 2004–2007.

Co-investigator, “Preventing Type 2 Diabetes in At-Risk Youth” (R01 NR008579 awarded to M. Grey), funded by the National Institute of Nursing Research, 09/01/03–06/30/05.

Co-investigator, “Parents’ Interpretation and Use of Genetic Information (R01HG02036 awarded to A. Gallo) funded by the National Institute of Human Genome Research, 7/1/01–6/30/07.Principle Investigator, Assessing Family Management of Childhood Chronic Illness” (R01 NR08048), funded by National Institute for Nursing Research, 04/01/03–03/31–07, $1,111, 312.

Co-investigator, “Preventing Type 2 Diabetes in High Risk Teens,” (R21 DK59248 awarded to M. Grey) funded by National Institute of Diabetes, Digestive, and Kidney Diseases, 10/1/00–9/30/02.

Principal Investigator, “How Families Define and Manage a Child’s Chronic Illness,” (RO1 NR01594), funded by National Center of Nursing Research, NIH, 5/1/87–8/31/92, $382,504 (last two years funded by competitive continuation award), Minority Supplement, 1991–1992.