Congratulations to Professor Marcia Van Riper and her team for receiving $7,500 in grant funding from the Dhillon Jordan Shah Innovation Fund in Congenital Heart Disease to conduct their study “Families and Congenital Heart Disease: Family Adaptation in Three Groups of Families.”

The purpose of the study is to explore family adaptation in three groups of families: (1) families of children with congenital heart disease, (2) families of children with Down syndrome and (3) families of children with congenital heart disease and Down syndrome. The guiding framework for the study is the Resiliency Model of Family Stress, Adjustment and Adaptation. Sixty semi-structured interviews will be conducted (20 parents from each of three groups will be interviewed).

Team members on the study include co-investigators Louise Fleming, PhD, RN; Beth Skelton, MSN, CPNP-PC; Doctoral Student; Kathleen Knafl, PhD, FAAN; Katherine Pepper, DNP, CPNP, CPMHS, CLC, RN; and Amelia Gibson, PhD along with Karen Shin, an undergraduate student.

Also known as “Dhillon’s Gift,” the Dhillon Jordan Shah Innovation Fund in Congenital Heart Disease was established by Dhillon’s maternal grandmother, Dr. Bev Foster, a long-time member of the School of Nursing faculty, and her family to honor his memory. Please read more about Dhillon and the fund established to memorialize him here.

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