Congratulations to Louise Fleming, current SON doctoral candidate, and Britt Pados, SON PhD recipient and assistant professor, who recently received research grants from the American Nurses Foundation and the American Academy of Nursing!
Fleming received her grant from the American Nurses Foundation (ANF) through the Southern Nursing Research Society (SNRS) to fund her dissertation study entitled “Parental Management of Adrenal Crisis in Children with Congenital Adrenal Hyperplasia.” Classic congenital adrenal hyperplasia (CAH), a rare, genetic, endocrine disorder, requires parents to inject a child with hydrocortisone intramuscularly during times of illness and adrenal crisis. The aims of the proposed study are to describe circumstances surrounding adrenal crises in children with CAH by examining parents’: 1) perceptions of the adrenal crisis experience; 2) descriptions of resources (e.g. healthcare professionals, Internet, etc.) used to manage times of crisis; and 3) strategies and approaches used to inform others in their social network (e.g. extended family, school personnel) about the nature and management of adrenal crisis events. Nurses are often the healthcare providers that prepare parents on how to manage episodically occurring, life threatening crises associated with pediatric chronic conditions such as CAH. The results of the proposed study will provide an evidence base for the development of programs and materials that promote and support families with children having such conditions.
Pados, PhD, RN, NNP-BC, received a research grant from the American Academy of Nursing through the Academy of Neonatal Nursing and the Foundation for Neonatal Research and Education to fund the Development and Content Validation of the Neonatal Eating Assessment Tool (Neo-EAT). Currently, there are no valid and reliable instruments available to guide clinicians in differentiating between infants experiencing typical difficulties with oral feeding and those in need of specialized assessment and treatment. The Neo-EAT will be a parent-report questionnaire to assess feeding difficulty in young infants less than six months old. This research grant will support a three-stage process of 1) generating items from the literature and qualitative parent descriptions of feeding difficulties, 2) validating the Neo-EAT with professional experts, and 3) validating the Neo-EAT with parents of infants less than six months old.